What We Do

We are a 501(c)(3) organization supporting Usher syndrome by raising funds for research and developing awareness programs for those with this rare disorder. We are currently focusing on raising funds to develop programs that would provide educational scholarships, youth camps, and travel expeditions. These programs are anticipated to launch in 2016.

Since its inception, The Megan Foundation has raised and donated over $100,000 to fund Usher syndrome research. We donate funds to research projects that range from clinical trials examining potential treatments for the disorder, to projects studying the mechanisms of the various genes involved to get a closer look at where a cure for Usher syndrome could be available. To read more about the latest in research, visit the Usher Syndrome Coalition.