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A Playset For A Mother And Her Kids

https://www.meganfoundation.org/wp-content/uploads/2015/08/A-Gift-for-Andi-HD-1.mp4 Share   Andi and I have never met in person. We’ve been Facebook friends for a few years now, connected by a shared desire to understand how to live as young women going deaf and blind in a blurringly fast paced world. Our search to understand this challenge outflows into our efforts to raise awareness for Usher syndrome, the …

My Matrix

Life is full of lessons, absorbed in ever-changing contexts. Lessons you learn in the past often are replaced by lessons learned in the present and future. I have learned and re-learned so many things in the last several months, it’s difficult to put them in order. But what is the biggest lesson I have learned? I still judge. The pain …

We All Want Happiness

I haven’t tried imagining very often what people feel or think when they see me with a guide dog and/or realize that I’m hearing/visually impaired. I remember what my reaction used to be before I was going blind – an uncomfortable excitedness. Uncomfortable because I didn’t know how to help this person or treat this person as I would anyone …

Lucky Charms

Waking up this past Monday morning seemed like it was going to be one of those awful Monday mornings where everything goes wrong and you dread the work week ahead of you. I opened my eyes looking out the window to an overcast sky as the backdrop to the spindly bare limbs of the trees, crossing their fingers over their …

Weddings and 13

I’ve never been superstitious about the number 13 but I’m starting to be inclined towards my boss’ aversion to it. My boss is known to go as far as not signing any checks on the 13th, making an extra copy of a 13 page document to get 26 pages, and avoiding writing the number 13 at all costs, even if …

My Fluttering Heart

Trips to the Mayo Clinic have become a routine aspect of my life. Every two months I travel with my mom to the clinic to receive steroid injections in my eyes. In the past year, my aunt has been coming along to assist mom with the driving, and to have the opportunity to see her son in Minnesota, who we …