A Playset For A Mother And Her Kids

https://www.meganfoundation.org/wp-content/uploads/2015/08/A-Gift-for-Andi-HD-1.mp4 Share   Andi and I have never met in person. We’ve been Facebook friends for a few years now, connected by a shared desire to understand how to live as young women going deaf and blind in a blurringly fast paced world. Our search to understand this challenge outflows into our efforts to raise awareness for Usher syndrome, the …

A Wild Year In Raising Awareness For Usher Syndrome

It’s been a wild year for me in raising awareness for Usher syndrome, most notably through an article featured on Cosmopolitan.com this past December. Being featured in national online publications is an exciting thing for me, though not necessarily in the way you may think it’s exciting. Of course, to be able to say “I’m featured in Cosmopolitan,” is flattering. …